Today was a special day for one young boy in the Valley, facing a challenge that affects about one in 10,000 people worldwide.
3-year-old Everet Gillaspy has Williams Syndrome, which is a genetic condition that is present at birth and can affect anyone. It sometimes causes medical problems, including cardiovascular disease and developmental delays. To raise awareness for Everet and many others, Mayor Duke Bennett announced the month of May to be known as “National Williams Syndrome Awareness Month.”
“There’s just not much knowledge base out there about it so we wanted to get a proclamation which we did today from the mayor, and make sure everybody is aware,” says Everet’s mother Rayetta Gillaspy.
Between 20,000 to 30,000 people in the U.S. are affected by Williams Syndrome.